World Orphan Drug Congress USA 2026

We treat your trial like it’s the only trial that matters. Because for your patients, it is.

World Orphan Drug Congress USA 2026 | June 9-11, 2026 | Boston, MA

At World Orphan Drug Congress USA 2026, meet the Ergomed Clinical Research team to discuss how we help sponsors reduce uncertainty and strengthen execution across rare disease clinical development. From early study strategy and feasibility to patient engagement, site support, and global trial delivery, Ergomed brings the cross-functional expertise needed to turn high-stakes rare disease study plans into trials that move forward with greater confidence.

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Join our Speaking Sessions

“Beyond Recruitment: The Value of Patient and Care Network Education in Rare Disease Clinical Research”

Day 1 | 11:50 AM

Paula Orandash
Director, Patient Engagement, Strategic Solutions and Patient Centricity

In this session, Paula Orandash will explore why patient and care network education should be considered a core part of rare disease clinical research, helping sponsors build more informed, sustainable, and patient-centered trial experiences.

“Inside the Policy Process: How Advocates Can Engage Decision-Makers for Greater Impact”

Day 1 | 2:50 PM

Kris O’Brien
Director, Operational Strategy, Strategic Solutions and Patient Centricity

In this session, Kris O’Brien will discuss how advocates can engage decision-makers more effectively and strengthen their impact within the policy process, supporting better alignment between rare disease communities, sponsors, and key stakeholders.

Meet our Experts

Connect with us at Booth #530 for conversations with biotech and pharmaceutical teams looking for a specialty CRO partner built for complex rare disease studies, vulnerable populations, and high-pressure development decisions.

Kailyn Bell
Executive Director, Business Development

Built for the realities of rare disease development.

Rare disease development demands more than operational scale. It demands a CRO partner that can simplify complexity without losing sight of the patients, families, sites, and care networks at the center of every study.

Ergomed Clinical Research supports sponsors navigating:

  • small and geographically dispersed patient populations
  • limited natural history data
  • endpoint uncertainty
  • complex regulatory and evidence-generation pathways
  • caregiver and family burden
  • referral pathway challenges
  • site readiness and retention risk
  • complex logistics across countries, patients, and sites

We work as an extension of your team to help bring greater clarity, stronger coordination, and disciplined delivery to every stage of rare disease clinical development.

Let’s discuss your rare disease development needs!

If you are planning a rare disease study and looking for a CRO partner that understands how to combine strategic insight, patient-centered thinking, and rigorous execution, we would welcome the conversation. Meet Ergomed Clinical Research at Booth #530 during World Orphan Drug Congress USA 2026 to discuss how we help sponsors make complex rare disease development more executable — from early planning through clinical delivery.

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