Rare Trials Summit 2026

We treat your trial like it’s the only trial that matters. Because for your patients, it is.

Rare Trials Summit 2026 | September 14-16, 2026 | Boston, MA

At the Rare Trials Summit 2026, Ergomed CRO is proud to be a Diamond sponsor. Meet the Ergomed Clinical Research team to discuss how we help sponsors reduce uncertainty and strengthen execution across rare disease clinical development. From early study strategy and feasibility to patient engagement, site support, and global trial delivery, Ergomed brings the cross-functional expertise needed to turn high-stakes rare disease study plans into trials that move forward with greater confidence.

We’re also proud to sponsor the Welcome Reception (5:30PM – 7:30PM) — join us to meet the team and continue the conversation over drinks

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Workshop

Tuesday, September 15 | Track 1 – Patient Identification and Enrollment | 02:45 – 04:15

Workshop: “Bridging the Generational Divide in Rare Disease Clinical Trials: Tailoring Communication to Maximize Recruitment, Retention, and Equity”

Paula Orandash
Director, Patient Engagement
Kris O’Brien
Director, Program Strategy, Rare Disease

Co-moderators for RTS workshop:

Hulda Svansdottir,
Caregiver and Patient Advocate, Dancing for Duchenne

Tara Hastings, MA,
Global Patient Engagement Lead for Rare Diseases, Rare Blood Disorders and Genomic Medicines, Sanofi

Meet our Experts

Connect with us for conversations with biotech and pharmaceutical teams looking for a specialty CRO partner built for complex rare disease studies, vulnerable populations, and high-pressure development decisions.

Debra Kientop
Senior Vice President, Strategic Solutions and Patient Centricity
Vinnette Sallo
Senior Director, Project Management
Kailyn Bell
Executive Director, Business Development
Andrew Fleming
Account Manager, Sales Development

Built for the realities of rare disease development.

Rare disease development demands more than operational scale. It demands a CRO partner that can simplify complexity without losing sight of the patients, families, sites, and care networks at the center of every study.

Ergomed Clinical Research supports sponsors navigating:

  • small and geographically dispersed patient populations
  • limited natural history data
  • endpoint uncertainty
  • complex regulatory and evidence-generation pathways
  • caregiver and family burden
  • referral pathway challenges
  • site readiness and retention risk
  • complex logistics across countries, patients, and sites

We work as an extension of your team to help bring greater clarity, stronger coordination, and disciplined delivery to every stage of rare disease clinical development.

Let’s discuss your rare disease development needs!

If you are planning a rare disease study and looking for a CRO partner that understands how to combine strategic insight, patient-centered thinking, and rigorous execution, we would welcome the conversation. Meet Ergomed Clinical Research during Rare Trials Summit 2026 to discuss how we help sponsors make complex rare disease development more executable — from early planning through clinical delivery.

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