In this case study, “Bridging the Gap: A Sponsor’s Path to Meaningful PAO Engagement,” authors Paula Orandash (Director, Patient Engagement) and Juliet Moritz (Senior VP Strategic Solutions and Patient Centricity) reveal how Ergomed helped a sponsor build a meaningful partnership with a rare disease Patient Advocacy Organization (PAO).
This close collaboration led to stronger patient engagement, enhanced clinical trial design, and long-term community trust, ultimately improving trial awareness, recruitment, and retention.
The study outlines a step-by-step engagement framework, real-world execution, and key lessons learned, from initial outreach and trust-building to integrating patient insights into protocol design. The result? Enhanced clinical trial awareness, improved recruitment and retention, and a long-term, patient-centered collaboration built on mutual respect and shared goals.
