The term “patient centricity” is very present in the pharmaceutical industry and clinical research alike. All companies insist on a patient-focused approach but have varying viewpoints. The goal of this podcast series, “The Voice of the Patient”, is to share these viewpoints from the perspectives of all stakeholders involved in the clinical trial process, especially […]
The term “patient centricity” is very present in the pharmaceutical industry and clinical research alike. All companies insist on a patient-focused approach but have varying viewpoints. The goal of this podcast series, “The Voice of the Patient”, is to share these viewpoints from the perspectives of all stakeholders involved in the clinical trial process, especially involving rare diseases. The first podcast of this series will introduce you to Ergomed’s patient centricity approach by sharing the views of our Patient Organization Representative Board members. Join our host Bojana Mirosavljevic as she asks one seemingly simple question; “What does patient centricity mean to you?”.
Host:
Bojana Mirosavljevic, PhD – Patient Engagement Officer, Ergomed
Bojana’s role is to ensure that the patient’s perspective is always considered during a clinical trial. Educated as a chemist and embryologist, in 2010 Bojana founded and is still president of an association for children with rare diseases in Serbia. In 2013, Bojana lost her daughter Zoya to a severe and rare form of Batten disease, and today, Serbia has Zoya’s law, for the prevention and diagnosis of rare diseases, which has saved more than 3,000 lives.